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ENGAGE FAMILIES AS PARTNERS IN THE EHDI PROCESS

Parents need and want information – we can debate about “how much information is too much too soon” and fret over whether they are understanding the information that they are given, but ultimately they have the right to the information and the responsibility to make decisions for their child. I think it is important to keep this in mind as we explore models for successful EHDI programs and evaluate information to be shared with parents and professionals.

National H & V Newsletter:
What do Parents have to say about professional Bias?
-Lisa Crawford (Summer 2009)


Connie Stevens

An Interview with Connie Stevens (text version).

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Resources to Share with Families:

Before or during screening

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KY EHDI Brochure

After screening - follow through support


After diagnosis